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Organizations that offer support and resources to caregivers

Lupus Foundation of America

Resource Content

The following organizations will offer further support and resources to caregivers:

National Alliance for Caregiving 

A non-profit coalition of national organizations focusing on issues of family caregiving. Here you can find the latest research and resources to support caregivers.

Caringbridge 

This website is designed to help families and friends stay connected during any type of health event. Family and friends can visit the site to stay informed and leave supportive messages. Using the support planner you can make a calendar that helps family and friends coordinate care and organize helpful tasks, like bringing a meal, offering rides, taking care of pets, and other needs.

Family Caregiver Alliance 

The Family Caregiver Alliance hosts this comprehensive website that has a number of resources, including factsheets and a state-by-state family care navigator.

National Family Caregivers Association 

This website gives family caregivers an opportunity to connect with fellow caregivers online through a state network of NFCA volunteers known as the Caregiver Community Action Network, (CCAN).

KidsHealth 

This practical and useful website is for parents of children and adolescents with a chronic condition. It offers insights and information about maintaining academic standings and learning how to become an independent adult.

The CARRA Network (The Childhood Arthritis and Rheumetology Research Alliance)

North American organization of pediatric rheumatologists who are committed to advancing the health and quality of life of children living with rheumatic disease and arthritis. This website provides connections to clinical research opportunities that benefit children.

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