Helpful hints when caring for a child with lupus

Lupus Foundation of America

Resource Content

  • Taking medication as prescribed is an important factor for children with lupus. Be vigilant about when and how your child is taking medications.
  • Keep doctor appointments, and complete requested laboratory tests in a timely manner.
  • Children with lupus should carry a card with their lupus diagnosis, list of current medications, and emergency contact information for their primary doctor and both parents.
  • Especially when taking corticosteroids, a child with lupus should wear some sort of medical ID. These are available in a variety of styles, and some insurance companies offer discounts on purchases.
  • Encourage the use of sun-protective clothing and hats and correct use of effective sunscreens.
  • Help your child learn to balance activities with rest, keep up with schoolwork, and cope with stress.

The long-term outcome for your child with lupus depends a great deal on which internal organs are affected and the success of treatment in preventing tissue damage. But equally important are a positive attitude and good coping skills. 

The more children can be helped to develop these skills, the more successful they will be at living well with lupus.

Medically reviewed on